Using “Web 2.0” to Deliver Diabetes Education and Address Local Needs

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Information about Using “Web 2.0” to Deliver Diabetes Education and Address Local Needs
Health & Medicine

Published on August 5, 2009

Author: utahdiabetes

Source: slideshare.net

Description

Using “Web 2.0” to Deliver Diabetes Education and Address Local Needs

American Association of Diabetes Educators 36th Annual Meeting, August 2009

Ginny Burns* CDE RN MEd, Grant Sunada MPH, Brenda Ralls PhD

*Presenter

Using “Web 2.0” to Deliver Diabetes Education and Address Local Needs American Association of Diabetes Educators 36 th Annual Meeting, August 2009 Ginny Burns CDE RN MEd, Grant Sunada MPH, Brenda Ralls PhD

Outline Develop an interactive diabetes resource Describe the Ask Ginny Experience Empower diabetes educators through improved interactions Brainstorm possible local applications

Develop an interactive diabetes resource

Describe the Ask Ginny Experience

Empower diabetes educators through improved interactions

Brainstorm possible local applications

Why in Utah More than 120,000 Utah adults (6%) have been diagnosed with diabetes 1 13.3% of Utah adults with diabetes are uninsured 2 Utah Health Status Survey (2007-2008). Office of Public Health Data. Utah Department of Health, Salt Lake City, UT Utah BRFSS 2005-2008

More than 120,000 Utah adults (6%) have been diagnosed with diabetes 1

13.3% of Utah adults with diabetes are uninsured 2

Utah Health Status Survey (2007-2008). Office of Public Health Data. Utah Department of Health, Salt Lake City, UT

Utah BRFSS 2005-2008

Why in Utah Minorities have risen from 1.9% (1960) to 17.7% (2007) 1 Disparities exist in age-adjusted percentages of Utahns with diabetes by race & ethnicity 2 Pamela S. Perlich, http://health.utah.gov/cmh/data/UtahDemographicTransformation.pdf Diabetes in Utah (2008), http://health.utah.gov/diabetes/pdf/fctsandfig/diabetesinutah_book_May08.pdf American Indian Pacific Islander African American Non-Hispanic White Asian American Hispanic/Latino

Minorities have risen from 1.9% (1960) to 17.7% (2007) 1

Disparities exist in age-adjusted percentages of Utahns with diabetes by race & ethnicity 2

Pamela S. Perlich, http://health.utah.gov/cmh/data/UtahDemographicTransformation.pdf

Diabetes in Utah (2008), http://health.utah.gov/diabetes/pdf/fctsandfig/diabetesinutah_book_May08.pdf

Our society is changing … so is the World Wide Web

Web 2.0 Static Lecture Expert-Model Interactive Conversation Consumer [Patient]-Model Public wants to have all the information From multiple sources In ways they can understand From experts AND peers When they want it Web 1.0 http://www.brochure2blog.org/

Static

Lecture

Expert-Model

Interactive

Conversation

Consumer [Patient]-Model

Public wants to have all the information

From multiple sources

In ways they can understand

From experts AND peers

When they want it

http://www.brochure2blog.org/







http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/

http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/7-Health-insurance/1-Information-about-health-insurance.aspx?r=1

Web 2.0 introduction 8 in 10 internet users (regardless of health status) look online for health info 1 AKA e-Patients 86% of internet users living with a disability or chronic illness have looked online for health information 2 compared with 79% of internet users with no chronic conditions Just half of adults with chronic conditions use the internet 2 But once online, they are avid consumers of health information http://www.pewinternet.org/trends/User_Demo_Jan_2009.htm S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx

8 in 10 internet users (regardless of health status) look online for health info 1

AKA e-Patients

86% of internet users living with a disability or chronic illness have looked online for health information 2

compared with 79% of internet users with no chronic conditions

Just half of adults with chronic conditions use the internet 2

But once online, they are avid consumers of health information

http://www.pewinternet.org/trends/User_Demo_Jan_2009.htm

S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx

S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx

Web 2.0 introduction E-patients living with a chronic condition are more likely than others to say that online info: Affects decisions about how to treat an illness Prompts new questions of a doctor Changes the way they cope with a chronic condition or manage pain 1 However, they feel frustrated by a lack of info or an inability to find what they are looking for S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx S. Fox, http://e-patients.net/archives/2009/01/doing-our-best-to-blow-your-minds-emerging-trends-in-chronic-disease-care.html

E-patients living with a chronic condition are more likely than others to say that online info:

Affects decisions about how to treat an illness

Prompts new questions of a doctor

Changes the way they cope with a chronic condition or manage pain 1

However, they feel frustrated by a lack of info or an inability to find what they are looking for

S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx

S. Fox, http://e-patients.net/archives/2009/01/doing-our-best-to-blow-your-minds-emerging-trends-in-chronic-disease-care.html

Our Conundrum Most people under age 40 are fully engaged with “social media” but not yet dealing with chronic illness Most people over 60 are starting to face chronic conditions but are not participating in social media What do we do??? S. Fox, E-patients With a Disability or Chronic Disease, http:// www.pewinternet.org/trends.asp

Most people under age 40 are fully engaged with “social media”

but not yet dealing with chronic illness

Most people over 60 are starting to face chronic conditions

but are not participating in social media

What do we do???

S. Fox, E-patients With a Disability or Chronic Disease, http:// www.pewinternet.org/trends.asp

Provide the Best Information Using the Best Communication Methods Don’t just tell people what to do Try to empower them to be better consumers of health information Make it easier to distinguish good information from bad Rise above junk-info User-generated content is here to stay Real risk is for diabetes professionals to be quiet Tailor content and delivery to the audience Encourage their participation Promote dialogue Enable people to tell their personal stories http://www.brochure2blog.org/

Don’t just tell people what to do

Try to empower them to be better consumers of health information

Make it easier to distinguish good information from bad

Rise above junk-info

User-generated content is here to stay

Real risk is for diabetes professionals to be quiet

Tailor content and delivery to the audience

Encourage their participation

Promote dialogue

Enable people to tell their personal stories

http://www.brochure2blog.org/

How to proceed or even start? People generally don’t believe that the Internet is a panacea 1 But it is empowering patients like never before 2 Where are you now? 3 Good: Aware of Web 2.0 applications Better: Joining the Web 2.0 conversation as a diabetes professional Best: Developing strategic organization- and systems-based approaches to Web 2.0 S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx e-Patients: How they can help us heal healthcare, http:// www.acor.org/epatientswiki/index.php / http://byumph.blogspot.com/2009/05/return-to-upha-web-20.html

People generally don’t believe that the Internet is a panacea 1

But it is empowering patients like never before 2

Where are you now? 3

Good: Aware of Web 2.0 applications

Better: Joining the Web 2.0 conversation as a diabetes professional

Best: Developing strategic organization- and systems-based approaches to Web 2.0

S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx

e-Patients: How they can help us heal healthcare, http:// www.acor.org/epatientswiki/index.php /

http://byumph.blogspot.com/2009/05/return-to-upha-web-20.html

Developing a strategy: Identify Target Audiences, Goals and Mediums Starting point – Utah Diabetes Prevention and Control Program Knew that online resources provided general information about diabetes Received a lot of requests for more specific, local information

Starting point – Utah Diabetes Prevention and Control Program

Knew that online resources provided general information about diabetes

Received a lot of requests for more specific, local information

Forward to Local Expert* Local Diabetes Questions Local Answers ???? * “Local Expert” not necessarily a diabetes expert

Identify Target Audiences, Goals & Mediums Goal – Help connect the members of our community who have diabetes Support each other Gain a better understanding of our disease Connect with local resources

Goal – Help connect the members of our community who have diabetes

Support each other

Gain a better understanding of our disease

Connect with local resources

Forward to Local Diabetes Expert Record for Public Reference Local Answers Local Diabetes Questions



Addressing a Community Need Gestational patient High glucose levels Difficulty getting into a free clinic and sliding-scale fee clinic Calls were made in her behalf Led to a discussion with medical directors

Gestational patient

High glucose levels

Difficulty getting into a free clinic and sliding-scale fee clinic

Calls were made in her behalf

Led to a discussion with medical directors

Improving local resources Patient had Primary Care Network insurance Had questions about diabetes pump supplies Called state office but information was confusing for patient and PCN staff Notified State office Arranged for more training for PCN staff members about diabetes products

Patient had Primary Care Network insurance

Had questions about diabetes pump supplies

Called state office but information was confusing for patient and PCN staff

Notified State office

Arranged for more training for PCN staff members about diabetes products

Sharing Information & Experiences Hypoglycemia question Individual had a chance to describe her unique symptoms Sends note back saying it was helpful to understand she was not alone

Hypoglycemia question

Individual had a chance to describe her unique symptoms

Sends note back saying it was helpful to understand she was not alone



 

Entrance Keywords What did a person type into their search engine to find Ask Ginny? cost of insulin pump utah carbohydrates lip tingle colds and flu medication for diabetics carbohydrate grams for pre diabetes vegetarian my ears are buzzing help i'm a diebetic minimed supplies utah diabetes ideal glucose number blue cross blue shields of utah diabetic pump coverage where to purchase a minimed insulin pump in utah i am a type 1 diabetic..should i exercise when i have a cold diabetes type 2 grams of carbs for dinner how many grams of sugar is o.k. on a daily basis for someone with type 2 diabetes how many grams of carbohydrates are in 1 piece of pumpkin pie is there a place where i can get a free high blood check in salt lake city, utah diabetes help utah program for uncontrolled diabetes questions to ask on diabetes i had a glucose level of 104 but my a1c was normal blocked nose and low glucose levels gestational diabetes vegetarian menu

What did a person type into their search engine to find Ask Ginny?

cost of insulin pump utah

carbohydrates lip tingle

colds and flu medication for diabetics

carbohydrate grams for pre diabetes vegetarian

my ears are buzzing help i'm a diebetic

minimed supplies utah

diabetes ideal glucose number

blue cross blue shields of utah diabetic pump coverage

where to purchase a minimed insulin pump in utah

i am a type 1 diabetic..should i exercise when i have a cold

diabetes type 2 grams of carbs for dinner

how many grams of sugar is o.k. on a daily basis for someone with type 2 diabetes

how many grams of carbohydrates are in 1 piece of pumpkin pie

is there a place where i can get a free high blood check in salt lake city, utah

diabetes help utah

program for uncontrolled diabetes

questions to ask on diabetes

i had a glucose level of 104 but my a1c was normal

blocked nose and low glucose levels

gestational diabetes vegetarian menu

Intermountain Healthcare Intranet Improved interactions between Provider-Patient Provider-Provider Patient-Patient? We know that it is powerful

Improved interactions between

Provider-Patient

Provider-Provider

Patient-Patient?

We know that it is powerful

Think globally, but … what can you do locally? Create a public or private Twitter account Example from Frankie95 1 Option to connect via Internet and/or text messages Connect with other CDEs Connect patients together Limited to 140 characters Provide links to in-depth information http://www.rikomatic.com/blog/2009/06/twitter-as-an-event-organization-tool-our-experience-with-the-frankie-95-birthday-festival.html

Create a public or private Twitter account

Example from Frankie95 1

Option to connect via Internet and/or text messages

Connect with other CDEs

Connect patients together

Limited to 140 characters

Provide links to in-depth information

http://www.rikomatic.com/blog/2009/06/twitter-as-an-event-organization-tool-our-experience-with-the-frankie-95-birthday-festival.html

Think globally, but … what can you do locally? Create a local diabetes Q&A blog Try Blogspot , Wordpress or others Set up to receive questions and comments via e-mail Patients can also respond to questions Moves beyond Q&A Link to Twitter account with TwitterFeed Use keywords (“meta-tags”) to increase people’s ability to find your blog Remember to track your web traffic with Google Analytics , Wordpress or others

Create a local diabetes Q&A blog

Try Blogspot , Wordpress or others

Set up to receive questions and comments via e-mail

Patients can also respond to questions

Moves beyond Q&A

Link to Twitter account with TwitterFeed

Use keywords (“meta-tags”) to increase people’s ability to find your blog

Remember to track your web traffic with Google Analytics , Wordpress or others

Think globally, but … what can you do locally? Join or create a diabetes social network on Facebook.com or Ning.com Join an existing national or international network AADE on Facebook TuDiabetes.com Connect local support groups Create a local identity Local diabetes educators and experienced e-patients become “moderators”

Join or create a diabetes social network on Facebook.com or Ning.com

Join an existing national or international network

AADE on Facebook

TuDiabetes.com

Connect local support groups

Create a local identity

Local diabetes educators and experienced e-patients become “moderators”

Next steps for Ask Ginny Converted Ask Ginny to a Blogspot blog Linked blog to Twitter Linked both to a Facebook Page

Converted Ask Ginny to a Blogspot blog

Linked blog to Twitter

Linked both to a Facebook Page

Next steps for diabetes in Utah Create a tool for diabetes educators and professionals under the working title Online Family & Community Health Center Use empowerment education model 1 to help those affected by diabetes: Reflect on self-management experiments Discuss the emotional experience of living with diabetes Engage in systematic patient-centered goal setting and problem solving Answer clinical questions and provide culturally tailored education materials Martha M. Funnell, Robin Nwankwo, Mary Lou Gillard, Robert M. Anderson, and Tricia S. Tang. Implementing an Empowerment-Based Diabetes Self-management Education Program. The Diabetes Educator, 2005, 31: 53-61.

Create a tool for diabetes educators and professionals under the working title

Online Family & Community Health Center

Use empowerment education model 1 to help those affected by diabetes:

Reflect on self-management experiments

Discuss the emotional experience of living with diabetes

Engage in systematic patient-centered goal setting and problem solving

Answer clinical questions and provide culturally tailored education materials

Martha M. Funnell, Robin Nwankwo, Mary Lou Gillard, Robert M. Anderson, and Tricia S. Tang. Implementing an Empowerment-Based Diabetes Self-management Education Program. The Diabetes Educator, 2005, 31: 53-61.

Next steps for diabetes in Utah Target audience Uninsured people affected by, or at risk for, diabetes Those who care for and care about them Reach Partner with universities to conduct market research Explore public kiosks, public libraries, ATMs and elementary schools Utilize text messages, existing media channels and support groups

Target audience

Uninsured people affected by, or at risk for, diabetes

Those who care for and care about them

Reach

Partner with universities to conduct market research

Explore public kiosks, public libraries, ATMs and elementary schools

Utilize text messages, existing media channels and support groups

Think Globally & Act Locally

Contact us Grant Sunada: E-mail: [email_address] Office: 801-538-6141 Twitter: @ UtahDiabetes Brenda Ralls: E-mail: [email_address] Ginny Burns: E-mail: [email_address] Twitter: @ AskGinny Blog: http://askginnyaboutdiabetes.blogspot.com … or [email_address] THANK YOU!

Grant Sunada:

E-mail: [email_address]

Office: 801-538-6141

Twitter: @ UtahDiabetes

Brenda Ralls:

E-mail: [email_address]

Ginny Burns:

E-mail: [email_address]

Twitter: @ AskGinny

Blog: http://askginnyaboutdiabetes.blogspot.com

… or [email_address]

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