Published on February 20, 2014
Building Research Capacity in AIDS Service Organizations to Enhance HIV Prevention Efforts for Young MSM Jimena Loveluck, MSW President/CEO HIV/AIDS Resource Center firstname.lastname@example.org Emily Pingel, MPH Managing Director University of Michigan Sex Lab email@example.com
Conflict of Interest Statement • We have no conflicts to disclose or report
Learning Objectives 1. Review CBPR principles. 2. Discuss the Goals & Objectives of UHIP. 3. Identify the mutual benefits of a community-academic partnership to refine HIV/STI prevention services. 4. Recognize challenges created by joint research between a large academic institution and small community-based organization. 5. Identify strategies for disseminating research findings and impact on services for young MSM and the community at large. 6. Assess opportunities to strengthen community-academic partnerships.
Principles of CBPR • Recognizes community as a unit of identity. • Builds on strengths and resources within the community. • Facilitates collaborative, equitable involvement of all partners in all phases of the research. • Integrates knowledge and intervention for mutual benefit of all partners. Israel B, Schulz A, Parker E and Becker A. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, pp. 173-202
Principles of CBPR • Promotes a co-learning and empowering process that attends to social inequalities. • Involves a cyclical and iterative process. • Addresses health from both positive and ecological perspectives. • Disseminates findings and knowledge gained to all partners. • Involves long-term commitment by all partners. Israel B, Schulz A, Parker E and Becker A. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, pp. 173-202
UNITED FOR HIV INTEGRATION AND POLICY (UHIP)
Putting CBPR Into Practice - UHIP • Focuses on Issues of Concern to Community ▫ Addressing structural vulnerability among BLYMSM. ▫ Use of data by community to advocate for change. • Directs & Improves the Research ▫ Adequate research formulation, data collection and dissemination.
UHIP Goals • Conduct a policy assessment to identify key stakeholders and policy opportunities. • Survey BLYMSM in the DMA about their social experiences and HIV/AIDS risk behaviors. • Analyze and integrate data into policy recommendations. • Refine our policy advocacy skills and partnerships. • Disseminate our recommendations to local, state, and national stakeholders invested in advocating for the rights of racial/ethnic minorities and YMSM.
Methods • Policy Diagnosis (Year 1) ▫ Stakeholder identification and interview (N = 50) ▫ Web-survey of YMSM in DMA (N = 429)
Top Structural Factors Shaping HIV Risk Housing Issues and Homelessness Unemployment Education HIV/AIDS Stigma Homophobia Weak Social Networks/Social Support Economic Disadvantage 0 10 20 30 40
Barriers to HIV Services • • • • • • • • • BLYMSM Access Cost Transportation/Location of services Age related barriers Beliefs and risk perceptions Provider credibility/competence Medical mistrust Navigating services Discrimination
Dissemination and Implementation • Sharing research findings with CBO staff, Board of Directors and client groups. • Presenting research findings to other relevant groups, such as CABs, planning councils, and funders. • Targeting specific areas of HIV education in outreach and testing efforts. • Informing areas of focus during testing sessions. • Assessing social network strategy.
FROM DATA TO PROGRAMS
Action Steps • Increase in certain types of services: ▫ Peer-led programs (StatusSexy.com) ▫ LGBT and youth specific clinical services ▫ Consolidated, interagency collaborations • LGBT training (C2P) ▫ Providers & Curriculum in health schools • Create a guide to open and accepting services and providers ▫ Development of a HIV/STI testing navigation tool (GetConnected)
StatusSexy.com •Increasing HIV Testing •Decreasing Stigma •Tailored to young gay and bi-attracted African American men •Knowing your status is always sexy
StatusSexy Campaign Features • Low-cost • User-friendly marketing • Youth-directed • Posters, palm cards • • Peer educators • Paid outreach workers • Website
StatusSexy Keys to Success • Joint testing and outreach events • Planning and advisory groups • The peer Sexy Team • StatusSexy models • Innovative use of social media • Ongoing evaluation
Other HARC Initiatives • New mobile unit with expanded services that include STI screening and insurance enrollment. • Implementation of Healthy Relationships intervention for HIV+ MSM. • New collaborations for HIV testing with LGBTQ and youth focused organizations. • Ongoing knowledge sharing with collaborative partners, community groups and professional networks.
Lessons Learned Strengths & Challenges
Strengths of Our Collaboration • Energetic Members • Diverse populations and stakeholders • Freedom to do advocacy • Passion and Commitment • Research capacity • UM Affiliation • HIV Expertise & Programming
Challenges of Our Collaboration • Funding • Organizational Capacity • Taking national directives into practical programming • Leadership Development • Time • UM Affiliation • Biomedical Focus in Prevention
New Directions • Mixed-Methods Evaluation of StatusSexy • Get Connected • Pilot testing of AIDS Stigma Index in SE-MI • CBO offering technical assistance in CBPR work • Addressing the challenges and opportunities of PrEP among Health Department and ASO providers
Future of Sex Lab Collaboration • Expansion of community partners? • Broader sharing of research data • Decision-making process for responding to new funding opportunities • Agreeing on priorities for future initiatives
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