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Sickle Cell Disease Teaching Presentation

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Information about Sickle Cell Disease Teaching Presentation
Health & Medicine

Published on December 23, 2008

Author: Spiderella

Source: slideshare.net

Description

This is a powerpoint presentation I did for my Vulnerable Communities class in nursing school.
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Assessment & Vulnerability Protection of Patients with Sickle Cell Disease By Tosin Ola, RN

What is Sickle Cell? Inherited disease Genetic mutation against malaria Defective hemoglobin in red blood cells Under stress, cells assume inverted C (sickle), rigid shape This leads to blockage of veins/arteries Blockage causes excruciating pain

Inherited disease

Genetic mutation against malaria

Defective hemoglobin in red blood cells

Under stress, cells assume inverted C (sickle), rigid shape

This leads to blockage of veins/arteries

Blockage causes excruciating pain

Genetics and the Transmission of SCD

Who Does it Affect? 85,000 people in the United States 4 million people worldwide Affects mostly those of African descent in the US Also found in African, Caribbean, Middle Eastern, Indian, Latin American, Native American and Mediterranean heritage

85,000 people in the United States

4 million people worldwide

Affects mostly those of African descent in the US

Also found in African, Caribbean, Middle Eastern, Indian, Latin American, Native American and Mediterranean heritage

Sickle Cell Variations All forms of SCD can exhibit the complications associated with the disease (OHSU, 2008). Sickle cell trait (HbAS) Sickle cell anemia (HbSS) Hemoglobin C disease (HbSC) Hemoglobin E disease Hemoglobin S-beta thallasemia

All forms of SCD can exhibit the complications associated with the disease (OHSU, 2008).

Sickle cell trait (HbAS)

Sickle cell anemia (HbSS)

Hemoglobin C disease (HbSC)

Hemoglobin E disease

Hemoglobin S-beta thallasemia

Assess Patient For Anemia Syncope, dizziness Shortness of breath Pallor, cold extremities Headache, chest pain Pain Infections Jaundice yellowing in skin, mouth, eyes Respiratory distress

Anemia

Syncope, dizziness

Shortness of breath

Pallor, cold extremities

Headache, chest pain

Pain

Infections

Jaundice

yellowing in skin, mouth, eyes

Respiratory distress

Complications of SCD Stroke Gallstones Splenic Sequestration Avascular Necrosis Leg ulcers Priapism Renal failure Acute chest syndrome Pulmonary hypertension Retinal damage Opioid tolerance, addiction or pseudoaddiction

Stroke

Gallstones

Splenic Sequestration

Avascular Necrosis

Leg ulcers

Priapism

Renal failure

Acute chest syndrome

Pulmonary hypertension

Retinal damage

Opioid tolerance, addiction or pseudoaddiction

Hospital Management Oxygenation Pain management Hydration Blood transfusions Antibiotics Bone marrow transplants & gene therapy Medications given: NSAIDS Opioids Hydroxyurea Folic acid

Oxygenation

Pain management

Hydration

Blood transfusions

Antibiotics

Bone marrow transplants & gene therapy

Medications given:

NSAIDS

Opioids

Hydroxyurea

Folic acid

Complementary & Alternative Therapies Herbal remedies Alternative therapy Sauna/Heat therapy Reiki Acupuncture Yoga Massage Prayer Meditation Breathing

Herbal remedies

Alternative therapy

Sauna/Heat therapy

Reiki

Acupuncture

Yoga

Massage

Prayer

Meditation

Breathing

Health Disparities in SCD Patients Structural barriers Socio-economic Patient-provider communication problems Provider discrimination and lack of cultural competency

Structural barriers

Socio-economic

Patient-provider communication problems

Provider discrimination and lack of cultural competency

Vulnerability Assessment Demographics Learning method Medical history Pain assessment Financial barriers Transportation Sickle cell risk factors Lifestyle factors Sex and genetic counseling Personal safety Mental health Please see Appendix A Vulnerability Assessment for SCD Patients

Demographics

Learning method

Medical history

Pain assessment

Financial barriers

Transportation

Sickle cell risk factors

Lifestyle factors

Sex and genetic counseling

Personal safety

Mental health

Action Plan Do a thorough and proper assessment of all SCD patients Develop an individualized care plan focusing on their vulnerabilities and pain issues Communicate this plan to help increase their self-care management ability Develop a caring relationship while focused on enhancing trust, cultural competency and support

Do a thorough and proper assessment of all SCD patients

Develop an individualized care plan focusing on their vulnerabilities and pain issues

Communicate this plan to help increase their self-care management ability

Develop a caring relationship while focused on enhancing trust, cultural competency and support

Conclusion Assess vulnerabilities Manage pain Avoid stereotyping & bias Practice cultural competency Provide compassionate care

Assess vulnerabilities

Manage pain

Avoid stereotyping & bias

Practice cultural competency

Provide compassionate care

References Dorsey, C. J., & Murdaugh, C. L. (2003). The theory of self care management for vulnerable populations. The Journal of Theory Construction and Testing , 7 (2), 43-49. Fiaskerud, J. H., Kim, S., Strehlow, A., Tullman, D., Verzemniek, I., & Koniah-Criffin, D. et al. (2002). Health disparities among vulnerable populations: Evolution of knowledge over five decades in Nursing Research publications. Nursing Research, 5 (2), 74-85. Goldberg, J., Hayes, W., & Huntley, J. (2004, November). Understanding Health Disparities . Retrieved from Health Policy Institute of Ohio: http://healthpolicyohio.org/pdf/healthdisparities.pdf Healthy People (n.d.). What are the Leading Health Indicators? Retrieved November 30, 2008, from http://www.healthypeople.gov/ Lusher, J., Elander, J., Bevan, D., Telfer, B., & Burton, P. (2006). Analgesic addiction and pseudoaddiction in painful chronic illness. Clinical Journal of Pain , 22 (3), 316-24. Massers, L. J. (November 18, 2008). Willamette Falls Hospital Merges with Providence Health System. Clackamas Review . Retrieved from http:// clackamasreview.com

Dorsey, C. J., & Murdaugh, C. L. (2003). The theory of self care management for vulnerable populations. The Journal of Theory Construction and Testing , 7 (2), 43-49.

Fiaskerud, J. H., Kim, S., Strehlow, A., Tullman, D., Verzemniek, I., & Koniah-Criffin, D. et al. (2002). Health disparities among vulnerable populations: Evolution of knowledge over five decades in Nursing Research publications. Nursing Research, 5 (2), 74-85.

Goldberg, J., Hayes, W., & Huntley, J. (2004, November). Understanding Health Disparities . Retrieved from Health Policy Institute of Ohio: http://healthpolicyohio.org/pdf/healthdisparities.pdf

Healthy People (n.d.). What are the Leading Health Indicators? Retrieved November 30, 2008, from http://www.healthypeople.gov/

Lusher, J., Elander, J., Bevan, D., Telfer, B., & Burton, P. (2006). Analgesic addiction and pseudoaddiction in painful chronic illness. Clinical Journal of Pain , 22 (3), 316-24.

Massers, L. J. (November 18, 2008). Willamette Falls Hospital Merges with Providence Health System. Clackamas Review . Retrieved from http:// clackamasreview.com

References cont. National Heart, Lung and Blood Institute (2007). Sickle Cell Anemia . Retrieved November 8, 2008, from http://www.nhlbi.nih.gov/health/dci/index.html Steiner, C., & Miller, J. (2006, December). Sickle cell disease patients in U.S. hospitals, 2004 (Agency for Healthcare Research and Quality). Rockville, MD: HCUP. Strickland, O. I., Jackson, G., Jilead, M., Mcguire, D. B., Quarles, S., & Douglas, P. et al. (2001). Use of focus groups for pain and quality of life assessment in adults with sickle cell disease. Journal of the National Black Nurses Association , 12 (2), 36-43. Tanabe, P., & Myers, R. (2007). Emergency department management of acute pain episodes in sickle cell disease. Emergency Medicine , 14 (2), 419-425. U.S. Department of Health and Human Services (January, 2000). Healthy People 2010: National Health Promotion and Disease Prevention Objectives . Retrieved November 29, 2008, from http://healthpeople2010.gov Watson, J. (1985). Nursing: The philosophy and science of caring (2nd ed.). Boulder: Colorado Associated Press. Weissman, D. E., & Haddox, J. D. (1999). Opioid pseudoaddiction--an iatrogenic syndrome. Pain , 36 (3), 363-366.

National Heart, Lung and Blood Institute (2007). Sickle Cell Anemia . Retrieved November 8, 2008, from http://www.nhlbi.nih.gov/health/dci/index.html

Steiner, C., & Miller, J. (2006, December). Sickle cell disease patients in U.S. hospitals, 2004 (Agency for Healthcare Research and Quality). Rockville, MD: HCUP.

Strickland, O. I., Jackson, G., Jilead, M., Mcguire, D. B., Quarles, S., & Douglas, P. et al. (2001). Use of focus groups for pain and quality of life assessment in adults with sickle cell disease. Journal of the National Black Nurses Association , 12 (2), 36-43.

Tanabe, P., & Myers, R. (2007). Emergency department management of acute pain episodes in sickle cell disease. Emergency Medicine , 14 (2), 419-425.

U.S. Department of Health and Human Services (January, 2000). Healthy People 2010: National Health Promotion and Disease Prevention Objectives . Retrieved November 29, 2008, from http://healthpeople2010.gov

Watson, J. (1985). Nursing: The philosophy and science of caring (2nd ed.). Boulder: Colorado Associated Press.

Weissman, D. E., & Haddox, J. D. (1999). Opioid pseudoaddiction--an iatrogenic syndrome. Pain , 36 (3), 363-366.

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