Published on March 5, 2014
Orlando's first Moving Day! National Parkinson Foundation's Awareness event presented by Florida Hospital! THANKS for having us 2
MYSTERIOUS WAYS How to actually Embrace your Parkinson’s disease and, for that matter, any other lifechanging adversity. 4
IDENTITY YOU ARE NOT PARKINSONS Retreat – Jimmy V 5
LIFE BEFORE PARKINSONS I FEEL YOUR PAIN WE ALL HAD ONE Doctors, lawyers, executives, accountants, politicians, actors, athletes, even a Pope, ….every job you can imagine. I love being an Attorney 8
LIFE CHANGING ADVERSITY Diagnosed with Parkinson’s disease Your spouse/parent/child getting PD You or family the victim of a crime Loss of a job/ Demotion Death of a Loved One Other ILLNESS, DISEASE OR INJURY BECOMING A CAREGIVER 9
INTRODUCING What I like to call The Nifty Nine Action Plan to Embrace Adversity 11
HOW TO LIVE LIFE TO THE FULLEST YOU NEED A PLAN: THE NIFTY NINE 12
FIRST: RESEARCH • New procedures • New medications • What works for others • What has not worked • The best doctor • The emotional stages SHOUT OUT 13
THE EMOTIONAL ROLLERCOASTER OF PARKINSON’S 14
SHOCK White light 16
DENIAL DISBELIEF autopsy 18
ANGER ISOLATION FEAR eyes 20
SADNESS HOPELESSNESS DEPRESSION Black hole 22
WAKE UP CALL TIME TO “GET OVER IT” Barn door – for the best 24
If you don’t stop, I CAN’T HELP YOU Art of Transformation – Downloadable Book JohnDecideSuccess@gmail.com Pick a Day and Commit to it in Concrete 25
SECOND: EAT HEALTHY FOOD • • • • • • VEGATABLES: Especially Green ORGANIC NON-ANIMAL PROTIEN FRUIT and unsweetened juice PURIFIED WATER GLUTEN-FREE FIND A FARMERS MARKET 26
HEALTHY FOOD continued DON’T PUT UNHEALTHY THINGS IN YOUR BODY • • • • • Sugar (especially Drinks/ Soda) Artificial Sugar (especially diet Drinks) Processed Foods/ GMOs Fried Food Animal Protien 27
THIRD: EXERCISE EXERCISE • Beyond Your Comfort Zone • Every Day (almost) • Sweat, Stretch, Strengthen Davis Phinney Victory Summit 28
FOURTH: WILL • • • • • Find YOUR Inner Strength You have the POWER within you Give yourself NO CHOICE DRIVE, DESIRE, DETERMINATION Intestinal Fortitude Weird kids 29
FIFTH: MENTAL HEALTH • Stay mentally active • • • • • euchre - crossword Do part-time what you used to do full-time Write a book of what you have learned in life Get more rest Spend more time with family Reduce stress – just say “no” – DON’T Over-commit 30
SIXTH: YOUR TRIBE • • • • • • • IDENTIFY YOUR SUPPORT SYSTEM YOUR TRIBE/ VILLAGE Family and other Caregivers Health Care Professionals Parkinson’s Associations Exercise Partners Financial Planners Attorneys (if necessary) Employment – Benefits – SS Disability WHO ELSE??? 34
SEVENTH: ATTITUDE • • • • • • • • Positive Attitude rock – cheer – worst thing Inspiration is Everywhere Tori story – 30 for 30 Impossible is a Temporary thing moon - math Remove your Blinders Overboard Continually Question Awareness See Beyond what is Apparent The mind is a powerful force placebo Simplify your life 36
EIGHTH: SILVER LINING • Use our new found “abilities” stare - poker • Help others - new perspective on life • Develop lasting friendships in the PD community • Humbling Experience: Become more loving, kind and compassionate (I was an A…………) • Express appreciation to our icare partner love you 38
NINTH: PURPOSE • WHAT is YOUR PURPOSE? • WHY were you put on this earth? • Do the answer to these questions have something to do with Parkinson’s? Maybe. Maybe not. Find yours. • Faith in yourself, Faith in others, Faith in your higher power, and Faith that your life has PURPOSE 39
The ultimate result of enacting this plan is: I am healthier now, over ten years into my PD, in body, mind and spirit, than I ever was before I started exhibiting the symptoms of PD. - John Baumann Parkinson’s Proud since 2002 40
iCARE Partners Experience DISBELIEF – DENIAL ISOLATION – SADNESS AWKWARDNESS - ANGER FEAR – DEPRESSION SHOCK 41
Quality of Life WE have the POWER to have the HIGHEST QUALITY OF LIFE that we can POSSIBLY HAVE. TAP INTO THAT POWER. 42
Life ain’t always beautiful Sometimes it's just plain hard Life can knock you down, it can break your heart…. But the struggles make you stronger And the changes make you wise No, life ain’t always beautiful But it's a beautiful ride What a beautiful ride. - songwriter Gary Allan 44
Michael J. Fox Quote “For everything this disease has taken, something of greater value has been given sometimes just a marker that points me in a new direction that I might not otherwise have traveled.” 45
Michael J. Fox Quote “So, sure, it may be one step forward and two steps back, but, after a time with Parkinson’s, I’ve learned that what is important is making that one step count, ….. always ….” 46
ALWAYS REMEMBER "Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around." - Leo Buscaglia 47
FOR THE BEST My mother is still not convinced • BUT look at where I am TODAY office • And look at how healthy I am TODAY • And now YOU are blessed to know what to do. Someone certainly does work in “MYSTERIOUS WAYS” 48
THANK YOU SO MUCH We will be available to talk, answer questions and sign any books (Decide Success, Courageous Stories of Inspiration and Roadmap to Success) for the rest of the event. 49
Day One Keynote Presentation. ... Great Keynote. ... may we have access to the PowerPoint presentations for the two keynotes?
iOS 9 can't download PowerPoint files. ... about how I could handle all my student needs with just an ipad using my nifty apps. ... iCloud, or Keynote ...
Join us for the TechEd opening Keynote with Microsoft’s Jason Zander, Corporate Vice President, Microsoft Azure and Joe Belfiore, ...
How to get Keynote FREE on a PC Windows computer ... Fed up of 'Death by PowerPoint'?! Then you need Keynote. ... Ice Nifty 78,052 views.
The keynote lecture on ... The Parkinson’s Kinetigraph offers ... Click here to watch a Channel nine news article on the Personal KinetiGraph™ ...
... ソフトウェアを購入するのは躊躇してしまう人も多いはずです。そこで今回は使い慣れたPowerPointやKeynote ... NIFTY ...
Add Fonts to Your iPad/iPhone for Word/Pages Keynote/Powerpoint Excel/Numbers and more! ... STEP NINE: Open your program ... Word, Powerpoint, Excel, and ...
Fifty Nifty United States Lincoln Dow. Subscribe Subscribed Unsubscribe 4,066 4K. Loading... Loading... Working... Add to. Want to watch this ...