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MS Advocacy

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Information about MS Advocacy
Health & Medicine

Published on February 1, 2009

Author: LaurenElissa

Source: slideshare.net

Description

This is a sample presentation created during an internship with the National MS Society, Michigan Chapter. This particular presentation is tailored to those living with MS in Saginaw, MI and aims to increase knowledge of what advocacy is and how to start being an advocate.
The presentation has accompanying instructional handouts.
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jf Fixler & ASSOCIATES Advocacy and You A sample advocacy training presentation tailored for those living with MS in Saginaw, MI Lauren Hansen 2008, All rights reserved

Until a cure for MS is found, activism is a concrete way that YOU can help improve the lives of others living with multiple sclerosis.

What would you like to see? A new curb cut? A disabled parking spot closer to the mall? A wheelchair accessible bathroom at the movie theater? Improvement of an existing city service? Increased medication coverage by your health plan? Flex time at work? Activism can help you achieve it!

A new curb cut?

A disabled parking spot closer to the mall?

A wheelchair accessible bathroom at the movie theater?

Improvement of an existing city service?

Increased medication coverage by your health plan?

Flex time at work?

What would you like to see? Advocacy can help you achieve it! Closer disabled parking at the mall! Flex time at work! A new curb cut on my street! Wheelchair accessible bathroom at the movie theater! Better insurance coverage!

The “dos” of advocacy Do: Access the appropriate resources Value your own experience and wisdom Ask for help when needed; work with others Practice your public speaking Speak up when conditions are unsatisfactory; be diplomatic Document your efforts Don’t give up!

Do:

Access the appropriate resources

Value your own experience and wisdom

Ask for help when needed; work with others

Practice your public speaking

Speak up when conditions are unsatisfactory; be diplomatic

Document your efforts

Don’t give up!

Advocacy arenas Federal Action Alerts (email, letter, phone) Legislative visits State Action Alerts(email, letter, phone) Legislative visits Local Local issue task force Community committee or council Op-ed articles Local government visit Private Letter writing campaign In-person visit

Action alert network

FEDERAL action alert Sent via msactionnetwork.org Contains graphics Follow link & enter zip code to access pre-written email to your legislator To sign up: http://capwiz.com/nmss/mlm/signup/

Sent via msactionnetwork.org

Contains graphics

Follow link & enter zip code to access pre-written email to your legislator

To sign up: http://capwiz.com/nmss/mlm/signup/

Recent FEDERAL action alerts Make MS therapies more affordable Biologic generics Increase federal funding for MS research Succeeded in making MS research eligible to receive funding from DOD! Urge funding to assist family caregivers Respite for caregivers Congressional MS caucus in Senate Kildee is not signed up Support the ADA Amendments Act of 2008 Source: http://capwiz.com/nmss/home /

Make MS therapies more affordable

Biologic generics

Increase federal funding for MS research

Succeeded in making MS research eligible to receive funding from DOD!

Urge funding to assist family caregivers

Respite for caregivers

Congressional MS caucus in Senate

Kildee is not signed up

Support the ADA Amendments Act of 2008

Your FEDERAL legislators - Senate Carl Levin [email_address] levin.senate.gov/contact/index.cfm (313) 226-6020 477 Michigan Ave. Suite 1860, Detroit, 48226 Debbie Stabenow [email_address] stabenow.senate.gov/email.htm (313) 961-4330 234 W. Congress Suite 550, Detroit, 48226 www.senate.gov

Carl Levin

[email_address]

levin.senate.gov/contact/index.cfm

(313) 226-6020

477 Michigan Ave. Suite 1860, Detroit, 48226

Debbie Stabenow

[email_address]

stabenow.senate.gov/email.htm

(313) 961-4330

234 W. Congress Suite 550, Detroit, 48226

Your FEDERAL legislators - House district 5 Dale E. Kildee [email_address] (800) 662-2685 Local Address 515 N. Washington Ave. Suite 401 Saginaw, MI 48607 Washington Mailing Address 2107 Rayburn House Office Building Washington, DC 20515 www.house.gov

Dale E. Kildee

[email_address]

(800) 662-2685

Local Address

515 N. Washington Ave. Suite 401

Saginaw, MI 48607

Washington Mailing Address

2107 Rayburn House Office Building

Washington, DC 20515

STATE action alert Sent via [email_address] No graphics (yet) Local/statewide issues Provides talking points for you to craft your own email Link provided to find your legislator To sign up: www.nationalmssociety.org => advocacy => action alert

Sent via [email_address]

No graphics (yet)

Local/statewide issues

Provides talking points for you to craft your own email

Link provided to find your legislator

To sign up: www.nationalmssociety.org => advocacy => action alert

Recent STATE action alerts Home care services/support expansion Increase funding for MI Choice Improve hourly wage of home health workers Individual insurance market reform

Home care services/support expansion

Increase funding for MI Choice

Improve hourly wage of home health workers

Individual insurance market reform

Your STATE legislators - Senate district 32 Roger Kahn MD (866) 305-2132 [email_address] Local Address 3177 Monticello Saginaw, MI 48603 Lansing Mailing Address 420 Farnum Building P.O. Box 30036 Lansing, MI 48909-7536 www.senate.mi.gov

Roger Kahn MD

(866) 305-2132

[email_address]

Local Address

3177 Monticello

Saginaw, MI 48603

Lansing Mailing Address

420 Farnum Building

P.O. Box 30036

Lansing, MI 48909-7536

Your STATE legislators - House district 95 Andy Coulouris [email_address] (888) 617-ANDY Local Address P.O. Box 2005 Saginaw, MI 48605 Lansing Office Mailing Address N1199 House Office Building PO Box 30014 Lansing, MI 48909-7514 www.house.mi.gov

Andy Coulouris

[email_address]

(888) 617-ANDY

Local Address

P.O. Box 2005

Saginaw, MI 48605

Lansing Office Mailing Address

N1199 House Office Building

PO Box 30014

Lansing, MI 48909-7514

Contact Decision Tree

Legislative Visits

Legislative visits - beforehand Make an appointment Get to know your legislator Establish a relationship before you ask for support Be prepared Know the issue you are presenting Know your legislator’s position on the issue

Make an appointment

Get to know your legislator

Establish a relationship before you ask for support

Be prepared

Know the issue you are presenting

Know your legislator’s position on the issue

Legislative visits - during Be on time, dress appropriately, sign guest book Introduce yourself as a constituent Tell your personal story Be organized in your presentation Longer is not necessarily better Don’t be afraid to say you don’t know Use as a chance to follow-up

Be on time, dress appropriately, sign guest book

Introduce yourself as a constituent

Tell your personal story

Be organized in your presentation

Longer is not necessarily better

Don’t be afraid to say you don’t know

Use as a chance to follow-up

Legislative visit - after Document: With whom you spoke Date of contact Send documentation to ruth.linnemann@mig.nmss.org Send follow-up thank you card Refer to specifics about the issue and your conversation Let this meeting be the start of ongoing contact with your legislator

Document:

With whom you spoke

Date of contact

Send documentation to ruth.linnemann@mig.nmss.org

Send follow-up thank you card

Refer to specifics about the issue and your conversation

Let this meeting be the start of ongoing contact with your legislator

Letter Writing

Letter writing Basic Format Your name, address, phone Date letter is sent Reference contract, bill number or law (as appropriate) Your signature

Basic Format

Your name, address, phone

Date letter is sent

Reference contract, bill number or law (as appropriate)

Your signature

Letter writing Content Be concise 1 main point Be diplomatic 1-2 sentences up front stating your position Brief description of the problem If letter about policy, include personal example Closing statement: response you expect and by what date

Content

Be concise

1 main point

Be diplomatic

1-2 sentences up front stating your position

Brief description of the problem

If letter about policy, include personal example

Closing statement: response you expect and by what date

How to address a letter U.S. Senator The Honorable (full name) United States Senator Address **** Dear Senator (last name): U.S. Representative The Honorable (full name) United States Representative Address **** Dear Congressman/woman (last name): State Senator The Honorable (full name) State Senator State Capitol P.O. Box 30036 Lansing, MI 48909-7536 **** Dear Senator (last name): State Representative The Honorable (full name) State Representative State Capitol P.O. Box 30014 Lansing, MI 48909-7514 **** Dear Representative (last name):

U.S. Senator

The Honorable (full name)

United States Senator

Address

****

Dear Senator (last name):

U.S. Representative

The Honorable (full name)

United States Representative

Address

****

Dear Congressman/woman (last name):

Letter writing Follow-up Keep a copy of your letter If you get a positive response, send thank-you If you get no response, follow-up. Cite your first letter or include a copy.

Follow-up

Keep a copy of your letter

If you get a positive response, send thank-you

If you get no response, follow-up. Cite your first letter or include a copy.

Private Sector Restaurant, School, Cinema, Shopping Center, Health Plan, Employer, Bank, etc.

Private sector Ask: For the name of the manager or supervisor About the formal grievance/appeal process Follow-up with a letter attn: actual person Document: With whom you spoke Their phone # On what date contact is made Keep a copy of your letter

Ask:

For the name of the manager or supervisor

About the formal grievance/appeal process

Follow-up with a letter

attn: actual person

Document:

With whom you spoke

Their phone #

On what date contact is made

Keep a copy of your letter

The Approach Be positive Express what you need Give suggestions

Be positive

Express what you need

Give suggestions

Resources www.nationalmssociety.org/advocacy http://msactivist.blogspot.com/ http://www.saginawcounty.com/ All cities must have an ADA Coordinator Communities of Power/Michigan Disability Rights Coalition http://www.copower.org/ Federal government http://senate.gov http://www.house.gov State government http://senate.mi.gov http://house.mi.gov

www.nationalmssociety.org/advocacy

http://msactivist.blogspot.com/

http://www.saginawcounty.com/

All cities must have an ADA Coordinator

Communities of Power/Michigan Disability Rights Coalition

http://www.copower.org/

Federal government

http://senate.gov

http://www.house.gov

State government

http://senate.mi.gov

http://house.mi.gov

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