Published on June 9, 2008
Maddie’s Journey Through Leukemia & Cord Blood Transplant
10/2/2006 Diagnosis: Acute Lymphocytic Leukemia Goal: Remission in 28 Days
Treatment Plan Includes Chemo, Steroids, and Antibiotics
11/1/2006 One Month into Treatment Primary Induction Failure
Doctors Prepare a New Treatment Plan while Current Chemo Causes Hair Loss
11/7/2006 New Treatment Plan includes Inpatient Chemo & Referral to U of M for Bone Marrow Transplant
12/14/2006 Remission is Finally Achieved!!!
12/26/2006 In Remission but Treatment Continues – Second Round of Inpatient Chemo
Winter 2006 Friends Help Make the Hospital Fun!
1/20/2007 Search of the National Bone Marrow Registry Shows No Acceptable Marrow Matches but Several Cord Blood Matches are Found
2/14/2007 Final Plans are Set for Cord Blood Transplant at U of M, Also Enrolled in Clinical Trial Studying Double Cord Transplants
2/21/2007 Off to U of M for Cord Blood Transplant
2/22/2007 Napping after Placement of 2 nd Central Line at CS Mott Children’s Hospital
Pre-Transplant Conditioning Includes 5 Days of Chemo & 4 Days of Total Body Radiation
3/5/07 Double Cord Blood Transplant
Pain From Mouth Sores Requires Continuous Morphine Failure to Take in Enough Calories Orally Makes IV Nutrition Necessary
Rising Blood Counts and Skin Rash (GVHD) Signs of Engraftment
4/9/2007 Continuing to Battle GVHD of the Skin & Gut on Easter
Multiple Medications to Control GVHD, Starting to Feel Better
4/14/2007 First Post Transplant Bone Marrow Biopsy Shows No Leukemia and 100% Donor Cells
4/20/2007 After 2 Month Stay Discharged from Mott Children’s Hospital, Moved to Apartment in Ann Arbor
Home Routine Includes Oral Meds, IV Meds, & IV Nutrition
5/21/2007 Home Again After 3 Months in Ann Arbor
Summer 2007 Follow-up Appointments at U of M Cancer Center Every 2 Weeks Throughout the Summer
8/7/2007 Poor Appetite Leads to Weight Loss and IV Nutrition is Once Again Required-Plans Made for Surgical Placement of Feeding Tube
9/21/2007 Surgery to Place Feeding Tube in Stomach – Surgical Complication Leads to Perforated Bowel And Emergency Surgery to Repair
10/31/2007 Healing from Surgery and Thriving on Tube Feedings
12/2007 Appointments to U of M Becoming Less Frequent, Reductions Made in Meds & Tube Feeds
3/5/2008 One Year Post Transplant: Leukemia Free and 100% Donor Cells
4/29/2008 Issues Being Monitored: GVHD Endocrine Issues (Hypothyroidism & Height/Weight)
Survival into the Future!!
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