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Glasgow-general assembly

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Information about Glasgow-general assembly
Science-Technology

Published on November 1, 2008

Author: aSGuest2325

Source: authorstream.com

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ERRI-EK(H)A General Assembly Glasgow, 17.7.2006AGENDA:1) Review of discussions of ERRI-EK(H)A ( 30 min)2) Position Paper - draft and next steps (20 min)3) Resource Mapping (30 min)4) Next steps : 1 ERRI-EK(H)A General Assembly Glasgow, 17.7.2006AGENDA:1) Review of discussions of ERRI-EK(H)A ( 30 min)2) Position Paper - draft and next steps (20 min)3) Resource Mapping (30 min)4) Next steps European Renal Research Initiative (ERRI) Brussels 01.02.2006Why ERRI-EK(H)A : 2 European Renal Research Initiative (ERRI) Brussels 01.02.2006Why ERRI-EK(H)A Background - History Contacts, negotiations, personal meetings, communication Meeting in Brussels 30.10.2005 Agenda set for Feb 1 meeting: Goal: increased recognition of discovery nephrology in FP7 provisionally subgrouped into: basic - translational - clinical 6-8 new IP consortia, 60-80M€ for the field Principles: integaction with all interested European groups, organization into task forces, marketing in the EU Commission and Parliament, with the help of learned societies and industry (also new) Participants: Agenda: self-organization of the group, visions for EU-FP7, communication, working groups to yield ”Position Paper” on nephrology as the basis to building pressure for long-term impact. Harry Holthöfer University of Helsinki Value Chain in Nephrology : 3 Value Chain in Nephrology Harry Holthöfer University of Helsinki Slide 2 Discovery Research Preclinical Development Translational Medicine Clinical Development COMBATING End-Stage (and other) Renal Diseases Bioinformatics, Systems biology Computational biology... Biomarkers, Patient recruitment Databases... Validation, DISEASE MANAGEMENT Prevention, cost- containment Slide 4: 4 9 Thematic Priorities: Health Food, agriculture and biotechnology Information and communication technologies Nanosciences, nanotechnologies, materials and new production technologies Energy Environment (including climate change) Transport (including aeronautics) Socio-economic sciences and the humanities Security and spaceEuratom: Fusion energy research, nuclear fission and radiation protection Cooperation – Collaborative research HEALTH COLLABORATIVE RESEARCH : 5 Activities  3 Pillars Biotechnology, generic tools and technologies for human health Translating research for human health Optimising the delivery of health care to European citizens HEALTH COLLABORATIVE RESEARCH HEALTH COLLABORATIVE RESEARCH : 6 First Pillar: Biotechnology, generic tools & technologies for human health Innovative therapeutic approaches & Interventions Detection, diagnosis and monitoring High-throughput research Predicting suitability, safety and efficacy of therapies (incl. alternatives to animal testing) HEALTH COLLABORATIVE RESEARCH HEALTH COLLABORATIVE RESEARCH : 7 Second Pillar: Translating research for human health Integrating biological data and processes, systems biology Research on the brain and related diseases, human development and ageing Translational research in infectious diseases (incl. HIV/AIDS, malaria, tuberculosis, SARS) Translational research in major diseases: cancer, cardiovascular disease, diabetes/obesity; rare diseases; other chronic diseases HEALTH COLLABORATIVE RESEARCH HEALTH COLLABORATIVE RESEARCH : 8 Third Pillar: Optimising the delivery of health care to European citizens Enhanced health promotion and disease prevention Translating clinical research into clinical practice Quality, solidarity and sustainability of health systems HEALTH COLLABORATIVE RESEARCH Divied into:ARFDiabetic nephropathyHypertensionTransplantationUremic CV toxicity : 9 Divied into:ARFDiabetic nephropathyHypertensionTransplantationUremic CV toxicity In the US/ASN GOALS:Steer priorities bySummarozing current state of knowledgeExplore and arriveat potential solutions to barriersDevelop specific recommendationsExplore the potential for new discoveriesSWOT Outcome: Expand investigator initiated research projects Support collaborative research infrastructure Support programmes expanding the impact of CV and renal diseases ERRI-EK(H)A:Two parallel tasks to integrate : 10 ERRI-EK(H)A:Two parallel tasks to integrate Visibility of research in FP7 (European Kidney Research) Urgency: Immediate Goal: Last minute inclusion of Kidney-related topics in FP7 Work Programme Dynamic interactions into other activities in FP7 WHO, HOW, WHEN, WHAT? Harry Holthöfer University of Helsinki Public awareness (European Kidney Health) Urgency: Immediate Goal: Partnering, organisatorial, stakeholder contacts Dynamic integration into other activities in FP7 WHO, HOW, WHEN, WHAT? To open doors, network together, alert of opportunities Activities since March 28 : 11 Activities since March 28 Harry Holthöfer University of Helsinki Topics of work defined by consultations Stakeholder map, strategy, outline for Position paper Presentations of March 28th accessible at www.technomedicum.fi Stakeholder map Election of members in the Working Groups Adding names of interested investigators to mailing list Teleconferences of MB members for follow-ups Newsletters Draft of Position Paper Activities since March 28 : 12 Activities since March 28 Harry Holthöfer University of Helsinki POSITION PAPER Resource mapping: questions : 13 Resource mapping: questions Expertise in research areas Low Medium High Interested Molecular Biology RNA DNA siRNA other Cell Biology Proteins Lipids Other Genetics Databases Immunology Experpimental models Proteomics Transgenics Metabolomics Antibody production Mouse engineering Tissue banks Computational methods Nanosciences IT/wireless applications Pharma-toxicology Blood presure research Renal physiology Other Harry Holthöfer University of Helsinki Resource mapping: additional info : 14 Resource mapping: additional info Themes Development Genetics-heredity-cilinical Hypertension-clinical Hypertension-basic Diabetes-basic Diabetes-clinical Chronic kidney disease-basic Chronic kidney disease-clinical Laboratory medicine in Renal disease Dialysis -clinical ¨Dialysis-basic Transplantation-basic Transplantation-clinical Acute renal failure-basic Acute renal failoure-clinical Clinical physiology Clinical trials in nephrology Outcome research in renalo diseases Health services research 3-5 relevant publications Interest as an EU-partner Interest as a consortium coordinator Harry Holthöfer University of Helsinki Resource Mapping: statistics : 15 Resource Mapping: statistics Responses: -58 responses, from UK (13) Germany (9) Italy (8) Netherlands (7) France (3) -Less than 3 from Spain Ireland Greece Sweden Finland Austria Hungary Czech Harry Holthöfer University of Helsinki Mol Biology RNA 34% High 15% Low DNA 19% High 12% Low siRNA10% High 10%Interested Cell Biology Proteins 29% High Lipids 9% High 32% Low Genetics 21% High 47% Low-Medium Resource Mapping: statistics : 16 Resource Mapping: statistics Databases 11% High 39% Low-Medium Immunology 31% High 25% Low-Medium Exp models 36% High 14% Low-Medium Transgenics 11% High 39% Low-Medium Harry Holthöfer University of Helsinki Proteomics 14% High 31% Low-Medium Metabolomics 5% High 45% Low-Medium Mouse engineering 7% High 41% Low-Medium Tissue banks 21% High 34% Low-Medium Resource Mapping: statistics : 17 Resource Mapping: statistics Computational methods 5% High 36% Low-Medium Nanosciences 0% High 46% Low Pharma-toxicology 7% High 41% Low-Medium Blood pressure 14% High 32% Low-Interested Harry Holthöfer University of Helsinki Interested as EU-consortium Partner 100% Coordinator YES, N = 6 For FP7 the European Kidney Community next steps Define and organize joint initiatives: -Exchange and disseminate good practice -Exchange personnel and arrange research education -Create databases, technical infrastructures, scientific expertise -Coordinate multicenter trials -Organize conferences, meetings, research training : 18 For FP7 the European Kidney Community next steps Define and organize joint initiatives: -Exchange and disseminate good practice -Exchange personnel and arrange research education -Create databases, technical infrastructures, scientific expertise -Coordinate multicenter trials -Organize conferences, meetings, research training Slide 19: 19 Timelines FP7 not yet completed, 11 legal decisions to be done Budget to be agreed upon Will be completed by October/06 Work programmes to finalized during June Preparations/lobbying possible for next ones “emerging needs”, adjustments Only on the basis for larger, non-organ specifics 1. Bring together all stakeholders representing the kidney community in Europe2. Raise awareness of kidney disease, its causes and consequences, the social and economic impact and the need for action particularly related to vascular diseases, DM & obesity;3. Become a reliable source of information, advice and reference for EU Institutions;4. Support EU initiatives and policy making regarding prevention, quality of treatment and care and research;5. Highlight the need for more funding and identify funding opportunities in EC programs for research, education, training, collaborations. : 20 1. Bring together all stakeholders representing the kidney community in Europe2. Raise awareness of kidney disease, its causes and consequences, the social and economic impact and the need for action particularly related to vascular diseases, DM & obesity;3. Become a reliable source of information, advice and reference for EU Institutions;4. Support EU initiatives and policy making regarding prevention, quality of treatment and care and research;5. Highlight the need for more funding and identify funding opportunities in EC programs for research, education, training, collaborations. Public policy aspect: Next steps, activities can be followed at www.technomedicum.fi (under ERRI-EKHA) : 21 Next steps, activities can be followed at www.technomedicum.fi (under ERRI-EKHA) Next steps: キ Ariela Benigni (Italy/clinical-translational)キ Jorge Cannata (Spain/clinical-translational) キ Rosanna Coppo (Italy/clinical-pediatrics)キ Moh Daha (Netherlands/basic-translational)キ Paul de Jong (Netherlands/prevention)キ Kai-Uwe Eckardt (Germany/basic & clinical scienceキ Jürgen Floege (Germany/basic & clinical science)キ Harry Holthöfer (Finland/basic-translational)キ Andy Rees (UK/clinical-translational)キ Eberhard Ritz (Germany/translational-clinical) キ Pierre Ronco (France/clinical-translational)キ Jan Weening (Netherlands/pathology) キ Tom Reiser (Brussels/management) : 22 キ Ariela Benigni (Italy/clinical-translational)キ Jorge Cannata (Spain/clinical-translational) キ Rosanna Coppo (Italy/clinical-pediatrics)キ Moh Daha (Netherlands/basic-translational)キ Paul de Jong (Netherlands/prevention)キ Kai-Uwe Eckardt (Germany/basic & clinical scienceキ Jürgen Floege (Germany/basic & clinical science)キ Harry Holthöfer (Finland/basic-translational)キ Andy Rees (UK/clinical-translational)キ Eberhard Ritz (Germany/translational-clinical) キ Pierre Ronco (France/clinical-translational)キ Jan Weening (Netherlands/pathology) キ Tom Reiser (Brussels/management) STRUCTURE: Interim management

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