Fighting Parkinson Disease with Data

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Information about Fighting Parkinson Disease with Data
Health & Medicine

Published on January 20, 2014

Author: kevinkrejci

Source: slideshare.net

Description

A story about how I am collecting, sharing and analyzing data to fight Parkinson's Disease (PD) and optimize my life. It was prepared for the Quantified Self "Show and Tell" on Jan. 16th, 2014 at Autodesk Gallery in San Francisco. Bottom line: I may have Parkinson's, but it doesn't have me!

Note: Most photos link to related source materials. Feel free to download, reuse, and comment. (CC Attribution License) I welcome suggestions for the presentation and QS routines! Hopefully the first of many as I track my progress against the progress of PD... The video of my presentation can be found here:

https://vimeo.com/groups/quantifiedself/videos/84443953

Fighting Parkinson Disease with Data Kevin Krejci January 16, 2014 Quantified Self Show and Tell #32

I’m A Dude with PD Kevin Krejci image: (cc) emdot @kevinkrejci

What is PD? Kevin Krejci image: (cc) emdot @kevinkrejci

Big QS Fan Organized event in 2011: "Healthcare Technology Convergence – Smart Consumers Meet Care Delivery of the Future“ Kevin Krejci image: (cc) emdot @kevinkrejci

Inspired to Overcome Kevin Krejci image: (cc) emdot @kevinkrejci

An “N” of Many Kevin Krejci image: (cc) emdot @kevinkrejci

Wheel of (mis)Fortune? Kevin Krejci image: (cc) emdot @kevinkrejci

Or QS Opportunity? Kevin Krejci image: (cc) emdot @kevinkrejci

A Quote - Michael J. Fox Kevin Krejci image: (cc) emdot @kevinkrejci

My Challenges* • Bradykinesia • Muscle Rigidity • Slowness • Coordination • Sleep * That don’t define me

My Actions* * That define me Kevin Krejci image: (cc) emdot @kevinkrejci

Examples Kevin Krejci image: (cc) emdot @kevinkrejci

The List Goes On Kevin Krejci image: (cc) emdot @kevinkrejci

My Goals • Short Term • Maximize Productivity • Typing, running around office, etc. • Reduce stress • Long Term • Slow or reverse PD progression • Keep playing beach soccer with kids • Hold my future grandkids

My QS Goals • Find efficient ways to measure/track my condition • Establish solid baselines • Try experiments and learn from them

Collect the Data! Kevin Krejci image: (cc) emdot @kevinkrejci

Sleep Kevin Krejci image: (cc) emdot @kevinkrejci

Fitness Kevin Krejci image: (cc) emdot @kevinkrejci

Lose Weight Kevin Krejci image: (cc) emdot @kevinkrejci

Fasting Helps! Kevin Krejci image: (cc) emdot @kevinkrejci

Movement Videos Kevin Krejci image: (cc) emdot @kevinkrejci

Movement Monitoring Kevin Krejci image: (cc) emdot @kevinkrejci

Movement Monitoring Kevin Krejci image: (cc) emdot @kevinkrejci

Typing Testing Kevin Krejci image: (cc) emdot @kevinkrejci

Symptoms and Meds Kevin Krejci image: (cc) emdot @kevinkrejci

Nutrition Kevin Krejci image: (cc) emdot @kevinkrejci

Lessons Learned (So Far) • Tracking is no easy task • Requires discipline and commitment • Data is too scattered and hard to crosscorrelate • Apps and social networks help to motivate

Fujitsu Sprout Platform Copyright 2012 Fujitsu Laboratories of America, Inc. Kevin Krejci image: (cc) emdot @kevinkrejci

Challenges to Quantify Me • Routines • Charging devices • Losing Cables • Making time for everything

Challenges to Quantify Me • Big Data  Good Data • Turning into actionable wisdom

So I Can Be There for Them Kevin Krejci image: (cc) emdot @kevinkrejci

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