Changes Afoot: Changing Relationships between Engaged Patients and Docs in Cancer Care

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Information about Changes Afoot: Changing Relationships between Engaged Patients and Docs...
Health & Medicine

Published on March 6, 2014

Author: JackWestMD



Discussion of how online patient communities and social media are changing relationships between engaged patients and oncologists, improving quality of cancer care.

CHANGES AFOOT: A NEW MODEL OF INTERACTION BETWEEN DOCTORS AND ENGAGED PATIENTS H. Jack West, MD Swedish Cancer Institute Seattle, WA Global Resource for Advancing Cancer Education (GRACE)

The Unidirectional Model Requires: •a finite amount of medical information •only the physician having access to it

NOBODY Can Keep Up with the Torrent of New Medical Information • Rate of new content more than doubling in last 20 yrs • More & more journals, especially in oncology (>180) (courtesy of Jason Priem/blog) No wonder it feels overwhelming

Before and After Molecular Oncology Before After Large populations Small Populations Marginal effects Major benefits Trials in hundreds of sites Trials in very few sites Generally rely on oncologists to enroll May well fall to patients and caregivers to seek out

25% 2000 81% 2011

Physicians may be concerned about losing control over the discussion

Physicians remain the most trusted source of information about medical issues From Fox, Peer to Peer Healthcare, Pew Internet and American Life Project, 2011 a 501(c)3 nonprofit

Bidirectional Model

Network Model

Patients are HIGHLY MOTIVATED to help themselves a 501(c)3 nonprofit

Adapting to a new model: Disruption comes with opportunities • Relationships between patients and physicians are changing • Bidirectional • Physicians no longer expected to know everything out there to know • Patients/caregivers will increasingly turn to social networks and searchable online content • Physicians will have a critical role, even if it a 501(c)3 nonprofit changes fundamentally in coming years

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