Published on March 14, 2008
AIDS ACTION & INTEGRATION ProjectsSupporting community based action on HIV/AIDSin Central and Eastern Europe Presentation to EC-DG SANCOLuxembourg, January 19,2006 : AIDS ACTION & INTEGRATION Projects Supporting community based action on HIV/AIDS in Central and Eastern Europe Presentation to EC-DG SANCO Luxembourg, January 19,2006 Arnaud WASSON-SIMON, coordinator / AIDES, France Ivo PROCHAZKA / Associated Partner / Czech AIDS Help Society Slide2: Present in 100 French cities (350 staff – 800 volunteers) - Main NGO provider of harm reduction services for drug users in France - Publisher of REMAIDES Magazine (45000 copies disseminated in 77 countries) - Founding member of AIDS ACTION EUROPE - AIDES treatment experts are active members of EATG. Yearly budget: more than 20 Millions € (2/3rd from French public sources) About AIDES: French community-based HIV/AIDS Association (founded in 1984) Slide3: To support the development of local community-based action on HIV/AIDS - Bilateral projects with fellow NGOs in Poland and Morrocco started in 1993 - The INTEGRATION Projects… - Programmes in Western and Central Africa (since 1997 – involving NGOs in 15 countries) - New programme in South-East Asia (4 countries) AIDES’international commitment: Slide4: Operates the HIV LIGHTHOUSE in Prague: support services for People Living with HIV/AIDS Emergency and short-term housing social and moral support activities (retreats for PLWHA) HIV helpline / HIV Testing and Counselling Active in the Czech National Committee on HIV/AIDS The Czech AIDS Help Society : www.aids-pomoc.cz Slide5: Objective: to support the development of local, community-based prevention and support for HIV/AIDS and Hepatitis in Central and Eastern Europe, especially in the new and future member states of the European Union. The INTEGRATION projects : Slide6: EXPANSION from the 1st phase of the Integration Projects (2001-2004) NEW PARTNERS : CEE-HRN, EATG, AIDS ACTION EUROPE (SoaAids), & AIDS Foundation Robert (Slovenia) ONGOING PARTNERS: AIDES (France) , ARAS (Romania) , DIA+LOGS (Latvia) , BADZ Z NAMI (Poland) , AIDS Help Society (Czech Rep.) Another 17 HIV/AIDS organisations involved as “Friends of the AAI Projects”. Key facts: Coordination by AIDES (Arnaud Wasson-Simon) with European Coordination team: Ruta KAUPE (DIA+LOGS, Latvia), Raminta STUIKYTE (CEEHRN, Lithuania), Nikos DEDES (EATG, Greece), & Nicoleta DASCALU (ARAS, Romania / on behalf of AAE). Governance: Slide7: Key achievements since 2001 : (primarily funded by EC/DG ENLARGEMENT) (primarily funded by EC/DG SANCO) - Country missions & reports : Estonia, Latvia, Lithuania, Poland, Czech Rep., Hungary, Romania (& filmed documentary about Estonia & Russia) Inter-country internships : 22 beneficiaries - 2 joint meetings (Riga and Brussels) focusing on the impacts of EU enlargement. - Research on the situation of drugs users in Romania and in Estonia - On-site internships for managers of Harm reduction projects (in France and in Finland) - documentaries about HIV in Hungary, Poland, Estonia and Latvia broadcasted on ARTE-TV (April 04 and March 05) - Multilingual newsletters & CD-ROM - AIDES documentary presented to the Harm Reduction Film Festival (Melbourne, 4/04) Public visibility: Slide8: - Organise 9 Best Practices Seminars Taking place primarily in new and future EU member states. From February 2005 to February 2008, we committed to : ALSO: - 10 country-assessment missions - Inter-country internships (26 beneficiaries) and training sessions. - Communications (Newsletter and more) by ARAS (Romania). Slide9: Ressources Total Cost: Approx 1.2 M. Euros Funding: Primarily European Commission - DG SANCO (70% or 837 390,00 €) Co-funders so far : ALSO: - volunteer work - Paid Staff made available (by « non-partner » NGOs) - about 40 persons covered their own cost to attend the first 2 seminars Slide10: Country missions (in 05) - SLOVENIA (done in June): by C. ILIUTA (ARAS) and A. WASSON-SIMON (AIDES) - Impressive and sustained Harm Reduction services for IDUS - Overall accessible quality healthcare (including updated ARVs) BUT: Local Civil Society difficulties – due (in part) to entry into EU….(as in most of the new EU member states…) - need for prevention and support services for vulnerable communities (other than IDUS) – especially for Gay Men. - BULGARIA: October 2005 (by S. KONOV, EATG and GEORGESCU, ARAS) - Severe lack of transparency and consultation in implementation of responses to HIV/AIDS (including in the management of the GFATM projects). - TURKEY: October 2005 (by M. GOETZ, AIDES) Severe shortcomings in some health service (difficult access for PLWHA / lack of confidentiality/ continuity of ARV procurement). - major need for public info and prevention campaigns. Slide11: Best Practice Seminars (1 of 9 !) Women: facing HIV in our wider Europe Promoting community-based approaches Paris, France - October 6-8, 2005 Really European Preparation team - 180 candidacies received… for 23 scholarships. - 50 participants (representing 33 NGOS from 20 countries) Need for (1) Long-term support for Community-based NGOs (for specific projects with vulnerable women) (2) more research (reproductive health / new prevention tools such as microbicides / specific impacts of ARVs on women) (3) streamlined quality health services for women in Europe Slide12: Best Practice Seminars (2 of 9) “SUSTAINABLE SERVICES FOR VULNERABLE GROUPS” BUCHAREST, ROMANIA, 10 – 13th NOVEMBER 2005 to facilitate collaboration and exchanges among different actors who deal with vulnerable groups (drug users, sex workers, Roma, MSM, inmates, people living with HIV/AIDS) 121 participants representing 58 organisations from 19 countries (from all over Europe – and the US) Advocacy Letter by participants sent to Romanian President about huge gap in funding (-80%) for HIV/AIDS prevention and support starting in 2006 (GFATM projects). Slide13: Preparing 2006 : Also: - Country missions to Slovakia & Cyprus (and publication of the 5 country-reports). - inter-country internships (hosted in France/Romania/Lithuania… about harm reduction, prevention for gay men, ARV treatments…) Slide14: Shared methodologies established (1st joint meeting of the partners / EU Parliament / Brussels / April 8-9, 2005) Clear administrative/financial guidelines (between AIDES and our main partners) Guidelines for the country missions and country reports Advices « HOW TO ORGANISE A SUCCESSFUL EUROPEAN SEMINAR » (by ARAS) Internal Evaluation: strategy and tools (by Ruta KAUPE, DIA-LOGS). DG SANCO remains a challenging funder… but is improving ! very welcome autorisation to involve « non-EU Europeans » (esp. Eastern Europe & Western Balkan / possibly Central Asia) in our activities. remaining difficulties to obtain clear responses on financial issues. Also in 2005: Slide15: A few questions (financial aspects): 1. The co-funding challenge: securing 30 or 40% of co-funding is extremely difficult for community-based NGOs – especially for European Projects (because they do not include the provision of local services). 2. One solution: a clear framework to value in-kind contributions: (1) staff made available by non-partner orgnisations (2) volunteer work and (3) expenses directly related to the project made by other (non-partner) organisations - So far, agreement by DG SANCO to report these as « income »… but not as an « expense » (???) 3. Solution needed also to be able to involve other NGO for short-term missions (host for internships…). 4. We need clear and simple responses ! (computer equipment…) Slide16: Proposals (financial aspects): Adoption by DG SANCO of best practices on funding NGOs (to be streamlined accross the EC) based upon experiences from the Global Fund / Private foundations… NGO projects deserve to be funded 100%: especially for NGOs in Central and Eastern Europe (& Southern Europe…) On the NGO side : best management standards: Slide17: Policy priorities: Greater aknowledgement of the role of COMMUNITY-BASED ORGANISATIONS - address vast differences in local funding made available for NGO work in the EU UNIVERSAL ACCESS to health care and prevention in the EU (including for undocument residents) - immediate ban on expulsion of immigrants with severe illnesses to countries where adequate care is nor guaranteed – (D. vs United Kingdom – Decision by the European Court on Human Rights – May 2, 1997) RESEARCH in new prevention technologies (Vaccines / Microbicides) and improved treatments FAIR PRICES for treatments (at the international level and within the EU): ensure access to generic versions of medicines in cases of public health emergencies (WTO/TRIPS). FUND THE FUND: sustained, needs-based and equitable funding by donor counties and EC to the Global Fund to Fight AIDS, TB and Malaria. Slide18: Suggestions to strengthen EU’s responses to HIV/AIDS To Follow-up from the Communication (December 2005) Creation of a clearly identified focal point on HIV/AIDS (EU HIV/AIDS ambassador ?) - to ensure coherence in between all DGs involved and improve synergies with other actors (Global Fund, National Governments, NGO, Private Foundations…). Improved communications on the results epidemiological surveillance (to complement the yearly reports by EuroHIV/ECDC) In Central and Eastern Europe: ensure continuation of pertinent projects funded by the Global Fund once the Grant ends (Estonia, Romania, Serbia…) Can’t the EU « step in » to ensure the provision of essential health services ? Slide19: THANK YOU !