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2006 Accessibility Status Report

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Information about 2006 Accessibility Status Report
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Published on December 10, 2007

Author: Sophia

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Children’s Specialized Hospital :  Children’s Specialized Hospital 2006 Accessibility Status Report April 2007 Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Leadership: New York Magazine - Top Children’s Hospital ranking. NJBiz Magazine - New Jersey’s Top 10 Places to work. Selected for the Kresge Challenge Grant. Hospital staff, senior leadership board representation on The Alliance for the Betterment of Citizens with Disabilities (ABCD). Involved with advocating for Early Intervention through this organization. Leadership serves on the Mayor’s Advisory Council on behalf of Children and Young Adults with Developmental Disabilities in the Township of Dover. CEO on NJ State Chamber of Commerce Board of Directors - participant in the Health Care Task Force that is developing a plan to address critical health care issues in the state including cost of health insurance, expansion of Medicaid, and the need for workforce to be trained to be able to meet our needs. CEO on Vitale Workgroup - Chairman of State Senate Health Committee established a task force to examine ways to expand Medicaid and a yearlong program on critical issues in NJ - presented on the needs of children, and Kidcare to cover all children in NJ. CEO – Leadership NJ - 50 individuals who attend pediatric rehabilitation. President of the NJ Chapter of the American Academy of Pediatrics. Residency, Intern, Student, and Fellow programs for administration, medicine, nursing, pharmacy, therapies. Partnership with the Education Supervisor from the Commission of Special Education to coordinate educational and clinical rehabilitation services to ensure positive transitions to school and community. Donate equipment to the United Spinal Organization that helps distribute adaptive equipment to the needy and Third World Countries. Member, New Jersey Hospital Association (NJHA). Administer a list serve for the Sig 17 of Resna regarding international appropriate technology. This is a forum for people around the world to discuss various adaptive equipment issues. Advocate for change in housing with area realtors- as well as Section 8 Housing for other families. Community policing alliance in Fanwood – works to improve the safety of individuals in town. Clinical consortium for Rehabilitation Technology with area hospitals, clinics and developmental centers. Opened Neurorehabilitation Program in New Brunswick. Top Docs named by New Jersey Monthly. Board Member and VP, New Jersey’s Pediatric Council on Research and Education (PCORE) and New Jersey AAP chapter. National Institute on Disability and Rehabilitation Research (NIDRR) grant with New Jersey Institute of Technology. Medicaid physician group meetings to ensure understanding of Rehabilitation Technology services and equipment. Humanism in Healthcare Award recipients – Healthcare Foundation of New Jersey. NASW-NJ Conference and By-Laws Revision Committees. Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Leadership (continued): Serve on the Board of Special Olympics. Top 5 of Children’s Hospitals in Employee Opinion Survey. Second place - Trailblazer Award for Innovative Practice (hospital division). Family and patient representatives presented on Capital Hill. Increased number of admissions from New York and Pennsylvania. Targeted Early Intervention Program Evaluation Team for Mercer County, NJ. Representation on the Division of Developmental Disabilities – make recommendations to the State of NJ and Federal government with regard to the IDEA and how laws impact children we serve. Serve on the Advocacy and Public Affairs Committee to the Brain Injury Association of New Jersey (BIANJ). Partnered with YMCA to provide aquatics program to children with disabilities. Member of the Governor’s Commission on Recreational Opportunities for Individuals with Disabilities. Members of the Child and Adolescent Task Force of the BIANJ. Leadership representation on the Cognitive Rehabilitation and Pediatric Task Force of the American Congress of Rehabilitation Medicine Brain Injury Special Interest Groups focusing on evidence based treatment and writing/developing treatment standards and guidelines. Recreation for Individuals with Disabilities Grant to implement adaptive aquatics program. Adjunct Professor - Dominican College. Psychology staff are members of various groups including Asperger Syndrome Education Network (ASPEN) and Center for Outreach and Services for the Autism Community (COSAC). Community agency representative to Scotch Plains-Fanwood Schools as part of their self-monitoring for NJ Dept of Education. Service on Mercer County Professional Advisory Committee. President elect for New Jersey Neuropsychological Society. Treasurer of the New Jersey Neuropsychological Society. Board member elect of the New Jersey Neuropsychological Society. National Task Force member for Family-Centered Care survey initiative. Full Accreditation through the Commission on Accreditation of Rehabilitation Facilities (CARF) and the Joint Commission on Accreditation of Healthcare Organizations (JCAHO). Partner with the COSAC to provide education and support services to families of children with Autism. Member of the Conference Advisory Team, Annual Pediatric Brain Injury Program, University of Miami Medical Center. Member of the Grants Review Committee for NIDRR. “Bridges” program to help children transition back to school. Family Faculty a part of organization wide work groups and committees, as well as supports for families on inpatient units. Lightning Wheels – internationally representation for our wheelchair sports team. Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Leadership (continued): CSH Test of Symbolic Communication Performance published. Editors and contributors for Curious Parent magazine. Expanded outreach to the Spanish speaking community through education on Spanish language television, radio stations and newspapers. Effect of yoga for children with Autism Spectrum Disorders - Pilot study. Professor - Union County College PTA Program. Organized a vision clinic model for “The Commission for the Blind”. Hosted New Jersey Speech and Hearing Association (NJSHA) 50th Anniversary Conference. National Institute of Health research program examining regression in autism. Medication Trials Research - autism. Representation on the Board of COSAC. Best Practices Taskforce - Autism, American Speech and Hearing Association (ASHA). Facilitated closure of the NJ Recycling Program for Adaptive Equipment Program. Member, Education and Training Committee - Governor’s Conference on Recreation for Individuals with Disabilities. Member, Governor’s Commission on Recreation for Individuals with Disabilities. Family-Centered Care National Task Force to develop questions for Press, Ganey. CARF elected parent liaison for accreditation survey team. President, NJ Neuropsychology Society. Member, NJ Neuropsychology Board of Trustees. Secretary, Executive Committee of Brain Injury Interdisciplinary Special Interest Group (BI-ISIG) of the American Congress of Rehabilitation Medicine (ACRM). CFO is an officer in the New Jersey Chapter of Healthcare Financial Management Association (HFMA). Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Financial: Completed a seamless process on re-investing the New Brunswick bond proceeds to attain a higher interest yield, with Guaranteed Investment Contracts (GIC’s). Reduced days in accounts receivable substantially from year-end 2005. Staff collected an increase of 8.5% in patient cash compared to 2005. Met all annual and quarterly reporting requirements in connection to the New Brunswick bond issue. Successfully renegotiated a lower interest rate with Commerce Bank in regards to a line of credit. Developed and implemented a profitability/cost accounting system. Successfully appealed retroactive reimbursement for Mountainside Long Term Care. Presentations to Community: Autism and Pervasive Developmental Disorders (PDD) - Somerset Library, NJ. Diversability - Ocean County Library, NJ. Autism - Toms River, NJ School System. Autism: Challenges, Strategies and Advancements - Brigantine Public School, NJ. Understanding Autism - JP Stevens High School, NJ. Autism Awareness Seminar - Sawtelle Learning Center/Kiwanis Club of the Haddons, NJ. Kean College – Occupational Therapy class on feeding issues. Touro College - Alternative Treatment Methods. "Sensory Integration in the Preschool Setting" at the Goddard School. “Puree Gourmet” course for parents. The profession of Occupational Therapy - Kean University Health EPIC program. Autism program on sensory and behavior strategies - Toms River, NJ School System. The Role of Family Faculty and Family-Centered Care - New Jersey Junior Women’s League. Panel Presenter - CAUCUS NJ, NJN Network. Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Presentations to Community (continued): Career Fair - Westfield High School. A Life in the Day of Pediatric Rehabilitation Therapist - Dominican College DPT students. Weight Management - LINK, Newark NJ. Understanding Autism - JP Stevens High School. Psychology Department Parent Workshop Series - Parenting Kids with Disruptive Behaviors and Parenting Young Children. Parenting Difficult Children - Fredon Township PTA. Depression and Bipolar Disorder in Children and Adolescents: What Educators Need to Know - Ocean County College. Communicating with Kids - PSE&G. Child Behavior Management Approaches with Special Needs Children - West Windsor-Plainsboro Parent Support Group. Straight Talk About Psychology - Seton Hall University undergraduate students. Siblings of Children with Autism - Resource Parent Group - Morristown NJ. Siblings of Children with Special Needs - Wayne Special Parents Group, Wayne NJ. Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Presentations to Professionals: Infant-Toddler Rehabilitation: A Model for Program Design and Quality Outcomes. Accepted for Poster Presentation at the Annual National Association of Children’s Hospitals and Related Institutions (NACHRI) Specialty Conference. Patient Monitoring and Nurse Call System. Accepted for Poster Presentation at the Fifth Annual Forum for Improving Children’s Health Care. Sponsored by the National Initiative for Children’s Health Care Quality. Building Effective Work Teams, One Micro Step at a Time. Accepted for Poster Presentation at the Annual NACHRI Specialty Conference. Presentation at the National American Academy of Pediatrics (AAP) Meeting on “New Jersey’s Pediatric Council on Research and Education (PCORE)” as PCORE Board Member and VP-NJ AAP Chapter, Amelia Island, Florida. “Update on AD/HD” at AAP/NJ Annual Meeting/CME Conference entitled “New Skills for Today’s Pediatrician, New Brunswick, NJ. An Overview of Inpatient Pediatric Rehabilitation - Grand Rounds, NYU Medical Center Department of Pediatrics. Strategies to Reduce the Incidence of Pneumonia in a Pediatric Long Term Care Population - National Association for Professionals in Infection Control and Epidemiology poster presentation and newsletter article. Functional Exercise & Strengthening for the Neurologically Impaired Child (MTS) - clinical inservice, Children’s Specialized Hospital. SI and basic NDT handling skills - Psychology Department. Miller Method - CSH therapists. Childhood Obesity - Union County School Nurses. Hosted Conference - NDT: A Theoretical Basis for Speech Pathologists, Occupational and Physical Therapists. Incorporating Yoga into the Special Needs Classroom - ASHA Conference. Physical Therapy Treatment Strategies for Autism - Hunter College. Feeding – New Jersey Speech and Hearing Association. Quantum Rehab - Pride Products. Sexuality in Pediatric Rehabilitation Settings - Annual Rehabilitation Psychology National Conference. Sexual Reorientation Efforts in Dissatisfied Same-Sex Attracted Men - National Association For Research And Therapy Of Homosexuality conference. Practical Play Therapy: Beyond the Theory – National Association of Social Workers - NJ. Professional Boundaries Techniques - Union County Education Commission, Beadleston staff. Crisis Intervention - McRoberts Security. Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Presentations to Professionals (continued): Multidisciplinary Treatment - NJ School Nurses Association Annual Conference. The Missing Rehabilitation Ingredient: Bringing Siblings Under Your Care - CSH Clinical Grand Rounds. Pediatric Spinal Cord Injury: The Coping Journey - Child Life National Conference. Pediatric Spinal Cord Rehabilitation - Hackensack Pediatric Trauma Symposium. Asperger Syndrome: Research Update - Children’s Specialized Hospital Symposium. Screening Test for Autism in Two Year Olds (STAT) - New Jersey Center for Outreach and Services for the Autism Community (COSAC) 24th Annual Conference. Autism - Monmouth Medical Center, Pediatric Residency Alumni Association. Autism Spectrum Disorders - COSAC Convention, Atlantic City NJ. Cerebral Palsy, Neuromuscular Conditions in Children - UMDNJ Physical Medicine & Rehabilitation (PM&R) Resident Didactic Lecture Series. Cerebral Palsy, Neuromuscular Conditions in Children - Kessler PM&R Board Review Committee. Management of Spasticity - Children’s Specialized Hospital Grand Rounds. Special Needs Car Seats - Tri-State Child Passenger Safety Conference. Cerebral Palsy, Brachial Plexus Injuries - Kean University Occupational Therapy Doctoral Program. C. Difficile: The New Epidemic - Children’s Specialized Hospital Clinical Rounds. Focus On the Myths: An Approach to Improving Healthcare Worker Influenza Immunization Rates - National Association for Professionals in Infection Control and Epidemiology poster presentation. Holistic Neurorehabilitation for Children and Implications for School Transition - Regional Pediatric Nursing Association, Philadelphia, PA. Evidence Based Review of Cognitive Rehabilitation in Pediatric Brain Injury - Pediatric Traumatic Brain Injury & Spinal Cord Injury Conference, Miami, FL. Holistic Neurorehabilitation - Rusk Institute for Rehabilitation, NYU Medical Center. Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Community Events and Programs: Club Sib program – to help siblings of disabled children better understand and cope with their brother’s/sister’s disability. Buena Vista – caregiver support group for Spanish speaking caregivers. Summer day camps, overnight camps for children with disabilities. Car seat checks with local police departments. School Sensitivity Day – elementary school students, teachers, parents “experience” what it is like to have a disability. Planning for the future of your child with special needs – a workshop designed for parents and case managers to assist with financial/other planning. Bring Your Child to Work Day. Health Fairs - Booth at various health fairs in surrounding communities - Prevention of spinal cord injury and traumatic brain injury. Also performed hearing screenings and educated the public about healthy hearing. Peer interactions for leadership groups from local middle and high schools with patients. My Hands Can Talk program – teaching sign language to people in the community. Fanwood Community Safety Fair. Friday Night Fever Program - helps to reduce social, attitudinal, architectural and other barriers. This group helps practice for social situations and increase confidence to interact in their home communities. Helps persons with disabilities to overcome various barriers through trips to the mall, the boardwalk, restaurants, plays, etc. Children with Special Needs: Funding, Nursing, Education and Legal issues – attorney led workshop for the community. Speech and Hearing month host open house lectures on language, speech and feeding impairments. Special Olympic events – provide hearing and speech screenings to communities supported by Special Olympics. Refer families to the NJ Protection and Advocacy Organization, Division of Developmental Disabilities, and the Catastrophic Illness Fund when needed. Offer assistance to help families tap into these resources to help meet their needs within the community. NJ Resource Guide handout during clinic appointments - assist families to find resources within their own community. Provide Home Evaluations to examine architectural barriers when deemed appropriate. After evaluation, recommendations regarding specific adaptive equipment are made. Refer families to companies that specify in home modifications, i.e. Accessible Design Associates or Sure Hands Lift and Care Systems. Information regarding ramps for home use - portable and permanent, and names of companies that can do assessments or rental programs for our families. Refer for Scalamobile evaluations - this is a piece of equipment that allows a caretaker to lift a wheelchair up and down stairs. Resource for our families regarding transportation issues - i.e. ordering special needs car seats, installing them safely in their cars, ordering easy-on vests for transportation purposes and assisting them with medical transportation when needed. Set up delivery for adaptive equipment to get to our patient's homes. Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Community Events and Programs (continued): Loan hospital owned equipment to inpatients and outpatients on an as needed basis to increase their accessibility to the community. School visits for consultation and follow-up with school/community integration. Education and re-integration of patients back into school environments- we send a team to the schools to sensitize them to the needs and issues particular to that patient, the team also works with the school. Home safety and Accessibility- our Patient Care Coordinators and Respiratory/Rehabilitation tech personnel act as liaison’s with outside vendors. Work with Cherished Creations, an organization that will pay for some of the electrical upgrades in the home. Work with community resources to reduce architectural barriers to patient homes. Program for transitions between the neurorehabilitation program and various school districts to advise and coordinate services once a child is discharged from the program. Car seat safety training and consultation to various community groups and professional organizations. AAC and AT evaluations are completed in patients’ schools. Camp Chatterbox - integrates the families of children who use AAC into training and provides a natural learning environment that “average" kids typically enjoy. School orientation – staff assists patients orientation to their classes through accompanying them to school. Psychology staff routinely consult with the school staff of their outpatients in order to advocate, coordinate care and advise regarding behavioral, emotional, social, and cognitive issues. Workshops for caregivers of special needs children related to body image, sexuality, self-esteem and peer relationships. Monthly Medical Seminars and Clinical Rounds advertised to all physicians, all consulting physician staff, to all sites, advertised via flyers and open to all staff and the public. Artworks Foundation Exhibit. Adaptive aquatics. Karate - programs for children with disabilities, chronic medical conditions. Special events to increase interaction with patients and their families with local and state wide businesses. Teddy Bear Clinic. Snapple Bowl. Kids Yoga – Yoga for kids with special needs. Haunted Trail Halloween program. Guy Talk/Girl Talk - discussion group programs for teens with disabilities, Toy’s To Go Program provides adapted toys for loan within the hospital, to all hospital sites, to teachers, therapists, parents via therapist or teacher, and to organizations to promote development via play in children with special needs. Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Publications - Professional: Roberti I, Sachdev S, Aronsky A: C1q nephropathy in a child with chromosome 13 deletion. Pediatric Nephrology. 2006; 21: 737-739. O’Brien JE, Birnkrant DJ, Dumas HM, Haley SM, Burke SA, et al: Weaning Children from Mechanical Ventilation in Post Acute Care Setting. Pediatric Rehabilitation 2006; 9: 365-372. Murphy TK, Snider LA, Mutch PJ, Harden et al: Relationship of Movements and Behaviors to Group A Streptococcus Infections in Elementary School Children. Biological Psychiatry. 2006 (In press). Kirvan CA, Swedo SE, Snider LA, Cunningham MW: Antibody-Mediated Neuronal Cell Signaling in Behavior and Movement Disorders. Journal of Neuroimmunology. 2006; 179(1-2): 173-179. Bruno J, Trembath D: Use of Aided Language Stimulation to Improve Syntactic Performance During a Weeklong Intervention Program. Augmentative and Alternative Communication, 22 (4): 300-313. Special Features: WCBS Coverage of Children's Specialized Hospital - Special Feature - Jade Alston - 2006 WB11 Coverage of Children’s Specialized Hospital - Special Feature - Jesse Morella - February 10, 2006 NJN Coverage of Children's Specialized Hospital - Special Feature - Jesse Morella - February 2, 2006 Publications - Newspaper: Deaf Audience Granted Full Access to Holiday Musical (Asbury Park Press - December 29, 2006) Brodeur Says No One Can Match His Team at Home (Star-Ledger – December 3, 2006) Finding Special Gifts for Special Children (Star-Ledger November 26, 2006) Local Athletes to Be Honored by YMCA (Teaneck Suburbanite – November 15, 2006) Scrapbook Celebrates Accident Victim’s Life (Asbury Park Press – November 15, 2006) Dedicated Teachers Help Child Overcome Disorder (Examiner – October 12, 2006) Jaycees Working to Create More CSH Parties (Westfield Leader – October 5, 2006) Big Town with an Even Bigger Heart (Bergen Record – October 4, 2006) Getting Together for a Back Yard Bar-B-Que with a Group of Special Kids (Courier News – September 22, 2006) Caring For a Child with Autism (Ocean County Observer – September 19, 2006) After Tragedy, Tribute to Recovery (New York Times – September 9, 2006) Going to Bat for Lightning Wheels Athletic Team (Rahway News Record – September 21, 2006) Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Publications – Newspaper (continued): A Special Day for Special Kids (Record Press – September 8, 2006) From Frightful Fate to Freshman (Windsor-Hights Herald – August 26, 2006) Athlete Scores Big in National Contest for Disabled Youth (Nutley Sun – August 24, 2006) Autistic Boy From Little Egg Harbor Has Lots of Friends (Asbury Park Press – August 21, 2006) Camp Helps Kids with Paralysis (Ocean County Observer - August 10, 2006) A Day at the Beach for Some Special Kids (Star-Ledger – August 1, 2006) NJ Miracle Child Guest of Honor at Fundraiser (Courier News – July 31, 2006) Doctors Said She Would Never Wake Up (Hoboken Reporter – July 30, 2006) Vernon Shreds for Injured Mike Ryan (Advertiser-News – July 13, 2006) Honor Student Paralyzed After School Scuffle (Mahwah Suburban News – July 5, 2006) Family Fun in Fanwood (Record-Press – June 9, 2006) Fighting to Stay a Family (The Star-Ledger – June 4, 2006) Wheelchair Athletes Awarded (Atom Tabloid & Citizen Gazette – June 2, 2006) ”Friday Night Fever” Car Wash (Rahway News Record – June 1, 2006) Autism Awareness (Rahway News Record – May 25, 2006) Wheelchair Athletes Go for the Gold (Record-Press – May 29, 2006) South Plainfield Scouting (South Plainfield Observer – May 12, 2006) Young Author Turns Childhood Accident Into Inspiration (Union Eagle – May 11, 2006) Wheelchair Athletes Compete in Cranford (Cranford Chronicle – May 11, 2006) Invitation to Save a Life (Asbury Park Press – May 5, 2006) A Young Girl’s Optimism Conquers a Crippling Illness (Staten Island Advance – May 3, 2006) Large No. 10 – Children’s Specialized Hospital (NJ BIZ – May 1, 2006) TV Show Comes to Life at CSH (Record-Press – April 28, 2006) Spring Benefit (West Essex Tribune – April 6, 2006) There’s No Place Like Home (Advance for Managers of Respiratory Care – April 2006) Healing Gardens: Nurturing With Nature (Lawrence Ledger – March 16 2006) Children’s Hospital Honored (Summit Observer – March 16, 2006) Seeing Into the Brain: New Technology Gives Surgeons Vital Information (The Star Ledger – March 14, 2006) Flippin For Flapjacks (Suburban News – March 8, 2006) Tribute to Women 2006 (U.S.1 – March 8, 2006) Dana Reeve Hailed for Courage, Caring (Record – March 8, 2006) Integration: Advocacy & Education How did we integrate persons served into their communities of choice?:  Integration: Advocacy & Education How did we integrate persons served into their communities of choice? Publications – Newspaper (continued): Growing Up with Arthritis (Advance For Administrators of the Laboratory – March 4, 2006 ) Sport Stacking Helps Hone Kids’ Minds (The Star-Ledger – March 3, 2006) Children’s Specialized Hospital Builds for Tomorrow (Union County Voice – March 2006) A Profile on a President Who Cares (Garden State Woman – February/March 2006) Game Theory (Herald News – February 28, 2006) Scientists Think Video Games May Provide Therapeutic Breakthroughs (Bergen Record – February 28, 2006) Children’s Specialized Hospital Making a Difference in Women’s Lives (Suburban News – February 15, 2006) Auction to Benefit Camp Chatterbox (Suburban News – February 15, 2006) Kiwanis Makes Donation (Express-Times (NJ Edition) - February 14, 2006 ) Football Player Continues on Long Road to Recovery (News Transcript – February 8, 2006) Hospitals Upgrade Facilities (The Star-Ledger – February 5, 2006) Guide to Select NJ Hospitals (The Star-Ledger – February 5, 2006) Sign Language Course Available at CSH (Suburban News – February 2, 2006) Mountainside Girl Wins State Pageant (Summit Observer – January 26, 2006) Congressman Ferguson Visits CSH (Suburban News – January 25, 2006) Concert at Bergen PAC to Aid DelDuca Fund (Suburban News, Village Gazette 0 January 25, 2006) A Sizable Difference (The Star-Ledger – January 27, 2006) Local Realtors Shine for Children’s Specialized Hospital (Brick Township Bulletin – January 12, 2006) Honored for Service (West Essex Tribune – January 5, 2006) Don’t Bully Me (Curious Parents – January 2006)

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